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Type: Journal article
Title: Study protocol: Our Cultures Count, the Mayi Kuwayu Study, a national longitudinal study of Aboriginal and Torres Strait Islander wellbeing
Author: Jones, R.
Thurber, K.A.
Chapman, J.
D'Este, C.
Dunbar, T.
Wenitong, M.
Eades, S.J.
Strelein, L.
Davey, M.
Du, W.
Olsen, A.
Smylie, J.K.
Banks, E.
Lovett, R.
Citation: BMJ Open, 2018; 8(6):e023861
Publisher: BMJ Journals
Issue Date: 2018
ISSN: 2044-6055
Statement of
Roxanne Jones, Katherine A Thurber, Jan Chapman, Catherine D, Este, Terry Dunbar, Mark Wenitong, Sandra J Eades, Lisa Strelein, Maureen Davey, Wei Du, Anna Olsen, Janet K Smylie, Emily Banks, Raymond Lovett, on behalf of the Mayi Kuwayu Study Team
Abstract: <h4>Introduction</h4>Aboriginal and Torres Strait Islander peoples are Australia's first peoples and have been connected to the land for ≥65 000 years. Their enduring cultures and values are considered critical to health and wellbeing, alongside physical, psychological and social factors. We currently lack large-scale data that adequately represent the experiences of Aboriginal and Torres Strait Islander people; the absence of evidence on cultural practice and expression is particularly striking, given its foundational importance to wellbeing.<h4>Method and analysis</h4>Mayi Kuwayu: The National Study of Aboriginal and Torres Strait Islander Wellbeing (Mayi Kuwayu Study) will be a large-scale, national longitudinal study of Aboriginal and Torres Strait Islander adults, with linkage to health-related administrative records. The baseline survey was developed through extensive community consultation, and includes items on: cultural practice and expression, sociodemographic factors, health and wellbeing, health behaviours, experiences and environments, and family support and connection. The baseline survey will be mailed to 200 000 Aboriginal and Torres Strait Islander adults (≥16 years), yielding an estimated 16 000-40 000 participants, supplemented through face-to-face recruitment. Follow-up surveys will be conducted every 3-5 years, or as funding allows. The Mayi Kuwayu Study will contribute to filling key evidence gaps, including quantifying the contribution of cultural factors to wellbeing, alongside standard elements of health and risk.<h4>Ethics and dissemination</h4>This study has received approval from national Human Research Ethics Committees, and from State and Territory committees, including relevant Aboriginal and Torres Strait Islander organisations. The study was developed and is conducted in partnership with Aboriginal and Torres Strait Islander organisations across states and territories. It will provide an enduring and shared infrastructure to underpin programme and policy development, based on measures and values important to Aboriginal and Torres Strait Islander peoples. Approved researchers can access confidentialised data and disseminate findings according to study data access and governance protocols.
Keywords: Mayi Kuwayu Study Team; Humans; Longitudinal Studies; Cross-Sectional Studies; Health Behavior; Personal Satisfaction; Mental Health; Research Design; Culture; Oceanic Ancestry Group; Australia; Surveys and Questionnaires
Rights: © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. This is an open access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY 4.0) license, which permits others to distribute, remix, adapt and build upon this work, for commercial use, provided the original work is properly cited. See: http:// creativecommons. org/ licenses/ by/ 4. 0/
RMID: 0030095378
DOI: 10.1136/bmjopen-2018-023861
Grant ID:
Appears in Collections:Medical Sciences publications

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