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dc.contributor.authorMpundu-Kaambwa, C.en
dc.contributor.authorChen, G.en
dc.contributor.authorHuynh, E.en
dc.contributor.authorRusso, R.en
dc.contributor.authorRatcliffe, J.en
dc.identifier.citationQuality of Life Research, 2018; 27(7):1781-1799en
dc.description.abstractPurpose: To examine the psychometric properties and suitability for use within the context of cerebral palsy research in children and adolescents of generic preference-based outcome measures (PROMs). Methods: Nine electronic databases were searched in this systematic review. The consensus-based standards for the selection of health measurement instruments (COSMIN) checklist were used to measure the psychometric properties of the PROMs. A meta-analysis was used to pool correlation coefficients for convergent validity using the Schmidt–Hunter method. Heterogeneity was assessed using the I-squared statistic (I2). Results: Four preference-based PROMs were identified from eight studies: Health Utilities Index—Mark 2 and 3 (HUI-2 and HUI-3, respectively), the Assessment Quality of Life-4 dimension (AQoL-4D) and the EuroQol-5 dimension 3 level (EQ-5D-3L). Only the HUI system was primarily developed for application with children/adolescents though health-state values for scoring the PROM were elicited from adults. The HUI-3 covered the most relevant constructs though it excludes important modules of health-related quality of life (HRQOL) such as activity limitations and participation restrictions. In terms of psychometric properties, evidence was presented for only five of COSMIN measurement properties: reliability (HUI3), measurement error (HUI-3), content validity (HUI-2 and HUI-3), Hypotheses testing (HUI-3 and AQoL-4D) and criterion validity (HUI-3). No papers reported on internal consistency, structural validity, cross-cultural validity or responsiveness of the preference-based measures in children and adolescents with cerebral palsy. Conclusions: This review highlights the dearth in studies using preference-based PROMs to measure HRQOL associated with cerebral palsy in children and adolescents. The HUI-3 demonstrated the strongest psychometric properties, though it does not cover all dimensions relevant to this population.en
dc.description.statementofresponsibilityChristine Mpundu-Kaambwa, Gang Chen, Elisabeth Huynh, Remo Russo, Julie Ratcliffeen
dc.rights© Springer International Publishing AG, part of Springer Nature 2018en
dc.subjectAdolescent; Cerebral palsy; Child; Instruments; Quality of life; Utilityen
dc.titleA review of preference-based measures for the assessment of quality of life in children and adolescents with cerebral palsyen
dc.typeJournal articleen
pubs.library.collectionPublic Health publicationsen
dc.identifier.orcidRatcliffe, J. [0000-0001-7365-1988]en
Appears in Collections:Public Health publications

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