Please use this identifier to cite or link to this item:
Scopus Web of Science® Altmetric
Type: Journal article
Title: How do people with dementia and family carers value dementia-specific quality of life states? An explorative "Think Aloud" study
Author: Ratcliffe, J.
Hutchinson, C.
Milte, R.
Nguyen, K.-H.
Welch, A.
Caporale, T.
Corlis, M.
Comans, T.
Citation: Australasian Journal on Ageing, 2019; 38(Suppl 2):75-82
Publisher: Wiley
Issue Date: 2019
ISSN: 1440-6381
Statement of
Julie Ratcliffe, Claire Hutchinson, Rachel Milte, Kim‐Huong Nguyen, Alyssa Welch, Tessa Caporale, Megan Corlis, Tracy Comans
Abstract: OBJECTIVE:To investigate the decision-making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia-specific quality of life states. METHODS:People with dementia (n = 13) and family carers (n = 14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment (DCE) and Best Worst Scaling (BWS). Participants were encouraged to explain their reasoning using a "Think Aloud" approach. RESULTS:People with dementia and family carers adopted a range of decision-making strategies including "anchoring" the presented states against current quality of life, or simplifying the decision-making by focusing on the sub-set of attributes deemed most important. Overall, there was strong evidence of task engagement for BWS and DCE. CONCLUSIONS:Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation.
Keywords: dementia
economic evaluation
health status
patient preference
quality-adjusted life years
Rights: © 2019 The Authors. Australasian Journal on Ageing published by John Wiley & Sons Australia, Ltd on behalf of AJA Inc. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
DOI: 10.1111/ajag.12646
Grant ID:
Published version:
Appears in Collections:Aurora harvest 8
Public Health publications

Files in This Item:
File Description SizeFormat 
hdl_121406.pdfPublished version348.33 kBAdobe PDFView/Open

Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.