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Type: Journal article
Title: Registry of Older South Australians (ROSA): framework and plan
Author: Inacio, M.C.
Bray, S.C.E.
Whitehead, C.
Corlis, M.
Visvanathan, R.
Evans, K.
Griffith, E.C.
Wesselingh, S.L.
Citation: BMJ Open, 2019; 9(6):e026319-1-e026319-7
Publisher: BMJ Journals
Issue Date: 2019
ISSN: 2044-6055
2044-6055
Statement of
Responsibility: 
Maria C Inacio, Sarah Catherine Elizabeth Bray, Craig Whitehead, Megan Corlis, Renuka Visvanathan, Keith Evans, Elizabeth C Griffith, Steve L Wesselingh
Abstract: INTRODUCTION:Australia's ageing population puts significant demands on the aged care and healthcare sectors. To monitor the provision of aged care and healthcare services to older people, each government body has an individual data collection system. Together these systems can be the basis for creating the evidence necessary to support future allocation of resources for our ageing community. The Registry of Older South Australians (ROSA) is a cross-sector multidisciplinary (ie, aged care and healthcare) platform built to address the challenges of monitoring people in aged care settings. This protocol describes the ROSA's framework and plans. METHODS AND ANALYSIS:A registry to capture 16 000 South Australians/year undergoing an aged care eligibility assessment was designed. ROSA will contain information captured by the Commonwealth and South Australian state Health Authority, linked by two data integrating authorities, and housed on a secured data platform. ROSA will contain information on the sociodemographic, health, function, psychological, social, home and safety assessment and concerns characteristics, aged care services, general health services, and mortality of people receiving aged care services. Registered participants will be prospectively monitored until their death and yearly updates of their aged care and healthcare services information will be added to the registry. ETHICS AND DISSEMINATION:ROSA will longitudinally monitor the services provided to a population that puts costly demands on the state healthcare and aged care systems, identify unwanted variation, and underpin future research. ROSA's expected outputs include an annual report, a research agenda that focuses on high burden conditions and potentially economically impactful questions, educational materials, and risk profiling tools. ROSA was approved by the South Australian Department for Health and Ageing HREC (HREC/17/SAH/125) and the Australian Institute of Health and Welfare HREC (EO2018/2/429).
Keywords: aged care; health economics; healthy ageing; population health; registry
Description: First published as 10.1136/bmjopen-2018-026319 on 19 June 2019
Rights: © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
RMID: 0030118547
DOI: 10.1136/bmjopen-2018-026319
Appears in Collections:Medicine publications

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