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Type: Journal article
Title: A patient-reported outcome measure for effect of glucocorticoid therapy in adults with inflammatory diseases is needed: report from the OMERACT 2016 special interest group
Author: Black, R.
Robson, J.
Goodman, S.
Hoon, E.
Lai, L.
Simon, L.
Harrison, E.
Neill, L.
Richards, P.
Nelsen, L.
Nebesky, J.
Mackie, S.
Hill, C.
Citation: Journal of Rheumatology, 2017; 44(11):1754-1758
Publisher: Canadian Rheumatology Association
Issue Date: 2017
ISSN: 0315-162X
Statement of
Rachel J. Black, Joanna C. Robson, Susan M. Goodman, Elizabeth Hoon, Lana Y.H. Lai, Lee S. Simon
Abstract: Objective. The need for a standardized instrument to measure the effect of glucocorticoid (GC) therapy has been well documented in the literature. The aim of the first GC Special Interest Group was to define a research agenda around the development of a patient-reported outcome measure (PROM) in this area. Methods. The results of a background literature search and the preliminary results of a pilot survey and 2 qualitative studies were presented to facilitate the development of a research agenda. Results. It was agreed that there was a need for a data-driven PROM that identified both positive and negative effects of GC therapy to be used across all inflammatory indications for systemic GC use in adults. A research agenda was developed, consisting of further qualitative work to assess the effect of GC across different groups including various indications for GC use, different age groups, different dosages, and duration of treatment.
Keywords: Humans
Treatment Outcome
Pilot Projects
Patient Reported Outcome Measures
Rights: The Journal of Rheumatology Copyright © 2017. All rights reserved.
DOI: 10.3899/jrheum.161083
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