Please use this identifier to cite or link to this item:
https://hdl.handle.net/2440/129524
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dc.contributor.author | Ekberg, K. | - |
dc.contributor.author | Weinglass, L. | - |
dc.contributor.author | Ekberg, S. | - |
dc.contributor.author | Danby, S. | - |
dc.contributor.author | Herbert, A. | - |
dc.date.issued | 2020 | - |
dc.identifier.citation | Palliative Medicine, 2020; 34(9):1202-1219 | - |
dc.identifier.issn | 0269-2163 | - |
dc.identifier.issn | 1477-030X | - |
dc.identifier.uri | http://hdl.handle.net/2440/129524 | - |
dc.description.abstract | Background: The importance of caring for children with complex and serious conditions means that paediatric palliative care must continue during pandemics. The recent pandemic of Coronavirus Disease 2019 (COVID-19) provides a natural experiment to study health communication during pandemic times. However, it is unknown how communication within consultations might change during pandemics. Aim: This study, a sub-study of a larger project, aimed to examine real-world instances of communication in paediatric palliative care consultations prior to and during the COVID-19 pandemic to understand how clinicians and families talk about the pandemic. Design: Paediatric palliative care consultations prior to, during, and immediately following the initial peak of COVID-19 cases in Australia were video recorded and analysed using Conversation Analysis methods. Setting/Participants: Twenty-five paediatric palliative care consultations (including face-to-face outpatient, telehealth outpatient and inpatient consultations) were video recorded within a public children's hospital in Australia. Participants included 14 health professionals, 15 child patients, 23 adult family members and 5 child siblings. Results: There was a pervasive relevance of both serious and non-serious talk about COVID-19 within the consultations recorded during the pandemic. Topics typical of a standard paediatric palliative care consultation often led to discussion of the pandemic. Clinicians (55%) and parents (45%) initiated talk about the pandemic. Conclusions: Clinicians should not be surprised by the pervasiveness of COVID-19 or other pandemic talk within standard paediatric palliative care consultations. This awareness will enable clinicians to flexibly address family needs and concerns about pandemic-related matters that may impact health and wellbeing. | - |
dc.description.statementofresponsibility | Katie Ekberg, Lara Weinglass, Stuart Ekberg, Susan Danby and Anthony Herbert | - |
dc.language.iso | en | - |
dc.publisher | SAGE Publications | - |
dc.rights | © The Author(s) 2020 Article reuse guidelines: sagepub.com/journals-permissions DOI: 10.1177/0269216320950089 journals.sagepub.com/home/pmj Creative Commons Attribution 4.0 International (CC BY 4.0) | - |
dc.source.uri | http://dx.doi.org/10.1177/0269216320950089 | - |
dc.subject | Palliative care; COVID-19; pandemics; communication; child | - |
dc.title | The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: a conversation analytic study | - |
dc.type | Journal article | - |
dc.identifier.doi | 10.1177/0269216320950089 | - |
dc.relation.grant | http://purl.org/au-research/grants/arc/DP180101941 | - |
pubs.publication-status | Published | - |
dc.identifier.orcid | Ekberg, K. [0000-0002-8237-1459] | - |
dc.identifier.orcid | Ekberg, S. [0000-0001-8837-7440] | - |
Appears in Collections: | Aurora harvest 8 Psychology publications |
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hdl_129524.pdf | Published Version | 492.5 kB | Adobe PDF | View/Open |
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