Please use this identifier to cite or link to this item:
Scopus Web of ScienceĀ® Altmetric
Type: Journal article
Title: The BrainIT group: concept and core dataset definition
Author: Piper, I.
Citerio, G.
Chambers, I.
Contant, C.
Enblad, P.
Fiddes, H.
Howells, T.
Kiening, K.
Nilsson, P.
Yau, Y.
Citation: Acta Neurochirurgica: the European journal of neurosurgery, 2003; 145(8):615-629
Publisher: Springer-Verlag Wien
Issue Date: 2003
ISSN: 0001-6268
Statement of
I. Piper, G. Citerio, I. Chambers, C. Contant, P. Enblad, H. Fiddes, T. Howells, K. Kiening , P. Nilsson and Y. H. Yau
Abstract: Introduction. An open collaborative international network has been established which aims to improve inter-centre standards for collection of high-resolution, neurointensive care data on patients with traumatic brain injury. The group is also working towards the creation of an open access, detailed and validated database that will be useful for post-hoc hypothesis testing. In Part A, the underlying concept, the group coordination structure, membership guidelines and database access and publication criteria are described. Secondly, in part B, we describe a set of meetings funded by the EEC that allowed us to define a Core Dataset and we present the results of a feasibility exercise for collection of this core dataset. Methods. Four group meetings funded by the EEC have enabled definition of a Core Dataset to be collected from all centres regardless of specific project aim. A paper based pilot collection of data was conducted to determine the feasibility for collection of the core dataset. Specially designed forms to collect the core dataset demographic and clinical information as well as sample the time-series data elements were distributed by both email and standard mail to 22 BrainIT centres. A deadline of two months was set to receive completed forms back from centres. A pilot data collection of minute by minute physiological monitoring data was also performed. Findings. A core-dataset was defined and can be downloaded from the BrainIT web-site (go to Core dataset link at: Eighteen centres (82%) returned completed forms by the set deadline. Overall the feasibility for collection of the core data elements was high with only 10 of the 64 questions (16%) showing missing data. Of those 10 fields with missing data, the average number of centres not responding was 12% and the median 6%. An SQL database to hold the data has been designed and is being tested. Software tools for collection of the core dataset have been developed. Ethics approval has been granted for collection of multi-centre data as part of a pilot data collection study. Interpretation. The BrainIT network provides a more standardised and higher resolution data collection mechanism for research groups, organisations and the device industry to conduct multi-centre trials of new health care technology in patients with traumatic brain injury.
Keywords: head injury
multi-centre network
health technology assessment
Description: The original publication can be found at
Provenance: Published online July 23, 2003
DOI: 10.1007/s00701-003-0066-6
Appears in Collections:Aurora harvest 6
Medicine publications

Files in This Item:
There are no files associated with this item.

Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.