Please use this identifier to cite or link to this item: https://hdl.handle.net/2440/6167
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Type: Journal article
Title: Developing and evaluating the grieflink web site: processes, protocols, dilemmas and lessons learned
Author: Clark, S.
Burgess, T.
Laven, G.
Bull, C.
Marker, J.
Browne, E.
Citation: Death Studies, 2004; 28(10):955-970
Publisher: Brunner/Mazel Inc
Issue Date: 2004
ISSN: 0748-1187
1091-7683
Statement of
Responsibility: 
Sheila Clark, Teresa Burgess, and Gillian Laven; Michael Bull, Julie Marker, Eric Browne
Abstract: Despite a profusion of recommendations regarding the quality of web sites and guidelines related to ethical issues surrounding health-related sites, there is little guidance for the design and evaluation of sites relating to loss and grief. This article, which addresses these deficiencies, results from a community consultation process of designing and evaluating a web site--GriefLink--for bereaved consumers and for the professionals who help them. It presents the literature review that informed the project, the recommendations for design and content, the lessons learned through the process itself, and the difficulties of evaluating the benefits of a grief-related web site. Some ethical and legal dilemmas in developing grief-related web sites are discussed and issues of design, content, process, evaluation, and general features are addressed, which may also be applied to other communication forms for loss and grief matters, such as the print media.
Keywords: Humans
Focus Groups
Grief
Confidentiality
Privacy
Social Support
Quality Control
Internet
User-Computer Interface
Australia
Evaluation Studies as Topic
Guidelines as Topic
Consumer Behavior
Description: Copyright © 2004 Taylor & Francis Inc.
DOI: 10.1080/07481180490512082
Published version: http://dx.doi.org/10.1080/07481180490512082
Appears in Collections:Aurora harvest
General Practice publications

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