Please use this identifier to cite or link to this item: http://hdl.handle.net/2440/90896
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Type: Journal article
Title: Realising opportunities for evidence-based cancer service delivery and research: linking cancer registry and administrative data in Australia
Author: Roder, D.
Fong, K.
Brown, M.
Zalcberg, J.
Wainwright, C.
Citation: European Journal of Cancer Care, 2014; 23(6):721-727
Publisher: John Wiley & Sons
Issue Date: 2014
ISSN: 0961-5423
1365-2354
Statement of
Responsibility: 
D.M. Roder, K.M. Fong, M.P. Brown, J. Zalcberg and C.E. Wainwright
Abstract: The traditional roles of Australian cancer registries have been incidence, mortality and survival surveillance although increasingly, roles are being broadened to include data support for health-service management and evaluation. In some Australian jurisdictions, cancer stage and other prognostic data are being included in registry databases and this is being facilitated by an increase in structured pathology reporting by pathology and haematology laboratories. Data linkage facilities are being extended across the country at national and jurisdictional level, facilitating data linkage between registry data and data extracts from administrative databases that include treatment, screening and vaccination data, and self-reported data from large population cohorts. Well-established linkage protocols exist to protect privacy. The aim is to gain better data on patterns of care, service outcomes and related performance indicators for health-service management and population health and health-services research, at a time of increasing cost pressures. Barriers include wariness among some data custodians towards releasing data and the need for clearance for data release from large numbers of research ethics committees. Progress is being made though, and proof of concept is being established.
Keywords: cancer registries; data linkage; privacy; data access; health-service management
Rights: © 2014 John Wiley & Sons Ltd
RMID: 0030024125
DOI: 10.1111/ecc.12242
Appears in Collections:Public Health publications

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