Please use this identifier to cite or link to this item: http://hdl.handle.net/2440/128148
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Type: Journal article
Title: Caregiver decisions along the Alzheimer's disease trajectory
Author: Truglio-Londrigan, M.
Slyer, J.
Citation: Geriatric Nursing, 2019; 40(3):257-263
Publisher: Elsevier
Issue Date: 2019
ISSN: 0197-4572
1528-3984
Statement of
Responsibility: 
Marie Truglio-Londrigan, Jason T. Slyer
Abstract: Despite the rising prevalence of Alzheimer's disease (AD), there is limited systematic evidence about disease specific decisions. The aim of this qualitative descriptive study was to identify decisions across the AD trajectory using focus groups of past and present caregivers. Qualitative content analysis revealed three main categories with corresponding categories and sub-categories. Main Category One-Decisions pertaining to self-yielded two categories: decision pertaining to the offering of self and care for the caregiver. Main Category Two-Decisions pertaining to the patient-yielded three categories: decisions about care and treatment, living arrangements, and protecting the patient from harm. Main Category Three-Communication and relationships in decisions-yielded two categories: navigation and negotiations. The results of this study will inform healthcare providers and caregivers as they work together to anticipate, prepare, and plan for care management decisions over the AD trajectory.
Keywords: Alzheimer's disease; Caregivers; Decision-making; Uncertainty; Focus groups
Description: Available online 29 November 2018
Rights: © 2018 Elsevier Inc. All rights reserved.
RMID: 0030105518
DOI: 10.1016/j.gerinurse.2018.10.015
Appears in Collections:Public Health publications

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