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Type: Journal article
Title: Being, doing and belonging after brain injury: an ethnographic exploration of the capabilities approach
Author: Butler, M.
Citation: Sites: a journal of social anthropology and cultural studies, 2011; 8(2):57-76
Publisher: University of Otago
Issue Date: 2011
ISSN: 1179-0237
Statement of
Mary Butler
Abstract: The capabilities approach, developed by Sen and Nussbasum, is a way of describing quality of life as a function of what the person is able to be and do. The capabilities approach is used in this paper to fill a distinct gap in the care literature, which has tended to focus on the burden of care, rather than on what the carer actually does. There are various approaches to developing capability sets for specific populations. In this paper a capability set for carers of adults with severe brain injury is arrived at by means of an ethnographic study of five families, carried out over one year. This capability set is further clarified using the heuristic device of ‘ideal types’ of responses to care, from both the perspective of the carer and the adult with brain injury. It is intended that this research may contribute to the development of a focused agenda regarding the capabilities that this community choose to value.
Rights: Copyright © in this published form is held by Sites: New Series, Association of Social Anthropologists of Aotearoa New Zealand, ALL RIGHTS RESERVED.. The contents of this journal will be available in an open access format 12 month(s) after an issue is published.
DOI: 10.11157/sites-vol8iss2id176
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