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https://hdl.handle.net/2440/132731
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Type: | Journal article |
Title: | Developmental disability at school age and difficulty obtaining follow-up data |
Author: | Doyle, L.W. Anderson, P.J. Burnett, A. Callanan, C. McDonald, M. Hayes, M. Opie, G. Carse, E. Cheong, J.L.Y. |
Citation: | Pediatrics, 2018; 141(2):e20173102-1-e20173102-7 |
Publisher: | American Academy of Pediatrics |
Issue Date: | 2018 |
ISSN: | 0031-4005 1098-4275 |
Statement of Responsibility: | Lex W. Doyle, Peter J. Anderson, Alice Burnett, Catherine Callanan, Marion McDonald, Marie Hayes ... et al. |
Abstract: | BACKGROUND:The relationship of developmental disability rates with difficulty obtaining follow-up data is unclear. With this study, we aimed to determine if children who attended research follow-up assessments with more difficulty had more disability at school age, compared with those who attended with less difficulty, and to establish the relationship between follow-up and disability rates. METHODS:Two groups, comprising 219 consecutive survivors born at <28 weeks' gestation or at <1000 g birth weight in the state of Victoria, Australia, in 2005, and 218 term-born, normal birth weight controls were assessed at 8 years of age for neurodevelopmental disability (any of IQ <-1 SD, cerebral palsy, blindness, or deafness). Children were classified as either more or less difficult to get to attend by research nurses involved in the study. RESULTS:The follow-up rate was 87% for both groups. Overall, children who attended with more difficulty had higher rates of neurodevelopmental disability (42%; 19 of 45) than those who attended with less difficulty (20%; 66 of 328) (odds ratio: 3.09, 95% confidence interval: 1.58 to 6.01; P = .001). As the follow-up rate rose among the 3 individual hospitals involved in the assessments, so did the rate of neurodevelopmental disability (P = .025). CONCLUSIONS:Children who attend with more difficulty have higher rates of neurodevelopmental disability at school age than those who attend with less difficulty, and disability rates rise with higher follow-up rates. Rates of neurodevelopmental disability will be underestimated if researchers are not persistent enough to obtain high follow-up rates. |
Keywords: | Infant, Extremely Low Birth Weight |
Rights: | © 2018, Copyright © 2018 by the American Academy of Pediatrics |
DOI: | 10.1542/peds.2017-3102 |
Grant ID: | http://purl.org/au-research/grants/nhmrc/546519 http://purl.org/au-research/grants/nhmrc/1060733 http://purl.org/au-research/grants/nhmrc/1053787 http://purl.org/au-research/grants/nhmrc/1081288 |
Published version: | http://dx.doi.org/10.1542/peds.2017-3102 |
Appears in Collections: | Paediatrics publications |
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