Toward a roadmap in global biobanking for health

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dc.contributor.authorHarris, J.
dc.contributor.authorBurton, P.
dc.contributor.authorKnoppers, B.
dc.contributor.authorLindpaintner, K.
dc.contributor.authorBledsoe, M.
dc.contributor.authorBrookes, A.
dc.contributor.authorBudin-Ljosne, I.
dc.contributor.authorChisolm, R.
dc.contributor.authorCox, D.
dc.contributor.authorDeschenes, M.
dc.contributor.authorFortier, I.
dc.contributor.authorHainaut, P.
dc.contributor.authorHewitt, R.
dc.contributor.authorKaye, J.
dc.contributor.authorLitton, J.
dc.contributor.authorMetspalu, A.
dc.contributor.authorOllier, B.
dc.contributor.authorPalmer, L.
dc.contributor.authorPalotie, A.
dc.contributor.authorPasterk, M.
dc.contributor.authoret al.
dc.date.issued2012
dc.description.abstractBiobanks can have a pivotal role in elucidating disease etiology, translation, and advancing public health. However, meeting these challenges hinges on a critical shift in the way science is conducted and requires biobank harmonization. There is growing recognition that a common strategy is imperative to develop biobanking globally and effectively. To help guide this strategy, we articulate key principles, goals, and priorities underpinning a roadmap for global biobanking to accelerate health science, patient care, and public health. The need to manage and share very large amounts of data has driven innovations on many fronts. Although technological solutions are allowing biobanks to reach new levels of integration, increasingly powerful data-collection tools, analytical techniques, and the results they generate raise new ethical and legal issues and challenges, necessitating a reconsideration of previous policies, practices, and ethical norms. These manifold advances and the investments that support them are also fueling opportunities for biobanks to ultimately become integral parts of health-care systems in many countries. International harmonization to increase interoperability and sustainability are two strategic priorities for biobanking. Tackling these issues requires an environment favorably inclined toward scientific funding and equipped to address socio-ethical challenges. Cooperation and collaboration must extend beyond systems to enable the exchange of data and samples to strategic alliances between many organizations, including governmental bodies, funding agencies, public and private science enterprises, and other stakeholders, including patients. A common vision is required and we articulate the essential basis of such a vision herein.
dc.description.statementofresponsibilityJennifer R Harris ... Lyle J Palmer ... et al.
dc.identifier.citationEuropean Journal of Human Genetics, 2012; 20(11):1105-1111
dc.identifier.doi10.1038/ejhg.2012.96
dc.identifier.issn1018-4813
dc.identifier.issn1476-5438
dc.identifier.orcidPalmer, L. [0000-0002-1628-3055]
dc.identifier.urihttp://hdl.handle.net/2440/87619
dc.language.isoen
dc.publisherNature Publishing Group
dc.rights© 2012 Macmillan Publishers Ltd. This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivative Works 3.0 Licence. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-nd/3.0/.
dc.source.urihttps://doi.org/10.1038/ejhg.2012.96
dc.subjectData Collection
dc.subjectDatabases, Factual
dc.subjectBiological Specimen Banks
dc.titleToward a roadmap in global biobanking for health
dc.typeJournal article
pubs.publication-statusPublished

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