Australian registries-ANZDATA and ANZOD

dc.contributor.authorMcDonald, S.
dc.contributor.authorRuss, G.
dc.date.issued2013
dc.description.abstractTransplant registries are a proven valuable source of data about transplantation. The inclusion of all transplants conducted in a region or country provides a different perspective from that of other observational studies. They allow examination of activity levels and trends, provide descriptions of outcomes which avoid the selection bias inherent in randomized clinical trials and facilitate hypothesis-generating studies. Examination of rare or unusual diseases and their outcomes is another area of strength. The models and structures of registries vary throughout the world. In Australia and New Zealand, kidney transplant outcomes are combined with dialysis in the Australia and New Zealand Dialysis and Transplant (ANZDATA) Registry. Deceased solid-organ donor activity is recorded in the Australia and New Zealand Organ Donor (ANZOD) Registry. Both of these registries are conducted and governed along similar lines. Key factors include strong clinical links in data collection and governance, and the involvement of contributors in a wide variety of activities and output.
dc.description.statementofresponsibilityStephen P. McDonald, Graeme R. Russ
dc.identifier.citationTransplantation Reviews, 2013; 27(2):46-49
dc.identifier.doi10.1016/j.trre.2013.01.003
dc.identifier.issn0955-470X
dc.identifier.issn1557-9816
dc.identifier.orcidMcDonald, S. [0000-0001-6103-1386]
dc.identifier.urihttp://hdl.handle.net/2440/79724
dc.language.isoen
dc.publisherWB Saunders Co
dc.rights© 2013 Elsevier Inc. All rights reserved.
dc.source.urihttps://doi.org/10.1016/j.trre.2013.01.003
dc.subjectHumans
dc.subjectKidney Failure, Chronic
dc.subjectRenal Dialysis
dc.subjectKidney Transplantation
dc.subjectRegistries
dc.subjectAustralia
dc.subjectNew Zealand
dc.titleAustralian registries-ANZDATA and ANZOD
dc.typeJournal article
pubs.publication-statusPublished

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