Exercising choice and control: a qualitative metasynthesis of perspectives of people with a spinal cord injury
Date
2019
Authors
Murray, C.
van Kessel, G.
Guerin, M.
Hillier, S.
Stanley, M.
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Journal article
Citation
Archives of Physical Medicine and Rehabilitation, 2019; 100(9):1752-1762
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Abstract
Objective: To systematically search the literature and construct a meta-synthesis of how6 choice and control are perceived by people with spinal cord injury (SCI)
Data Sources: Medline, Academic Search Premier, CINAHL, Cochrane, EMBASE,8 Health Source, ProQuest, PsychInfo, SAGE and SCOPUS were searched from 1980 until9 September 2018 including all languages. Reference lists of selected studies were also10 reviewed.
Study Selection: Eligible qualitative studies included perspectives about choice of control as12 reported by people with SCI. Studies were excluded if they included perspectives from other13 stakeholder groups. 6706 studies were screened for title and abstract and full text of 12714 studies were reviewed resulting in a final selection of 29.
Data Extraction: Characteristics of the studies were extracted along with any data (author16 interpretations and quotes) relating to perspectives on choice and control.
Data Synthesis: First order analysis involved coding the data in each study and second order18 analysis involved translating each segment of coded data into broader categories with third19 order analysis condensing categories to two broad overarching themes. These themes were20 experiencing vulnerability or security and adapting to bounded abilities.
Conclusions: Perspectives of choice and control are influenced by inter-related22 environmental, interpersonal and personal contexts. From a personal perspective, participants23 reported a readiness for adaptation that included turning points where emotional and24 cognitive capacity to make choices and take control changed. Health professionals need to be25 responsive to this readiness, promote empowerment and foster, rather than remove, hope.
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Link to a related website: https://www.sciencedirect.com/science/article/pii/S0003999319300899?via%3Dihub, Open Access via Unpaywall
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Copyright 2019 WB Saunders