Family caregiver involvement in home based palliative care for cancer patients in Indonesia
Date
2014
Authors
Rochmawati, E.
Wiechula, R.
Cameron, K.
Editors
Advisors
Journal Title
Journal ISSN
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Conference item
Citation
Asia Pacific Journal of Clinical Oncology, 2014, vol.10, iss.Suppl. 9, pp.40-41
Statement of Responsibility
Erna Ms Rochmawati, Rick Dr Wiechula, Kate Dr Cameron
Conference Name
2014 World Cancer Congress Abstracts (3 Dec 2014 - 6 Dec 2014 : Melbourne, Vic.)
Abstract
Methods: An ethnographic approach was utilised in this study. Observations
and informal interviews were undertaken in the patient’s home during
home visits from one Indonesian palliative care service.
Results: Findings identified that in general the primary family care giver was
the patient’s spouse. Family caregivers experienced several burdens including
employment status, financial status and limited respite. The study highlighted
the involvement of others in care giving such as other family
members, home care nurses and paid carers. This involvement raises potential
communication issues. Disagreement regarding best care and treatment
for the patient among family member was frequently found in this study.
Interestingly, the study found that family caregivers had easy access and
open communication with palliative health professionals. Family caregivers
were involved in different types of care including personal care, meals and
management. In addition, spiritual care was conducted by most family
caregivers through supporting patients to do religious practices.
Conclusions: This study revealed the involvement of family and other
parties in the home based care of palliative patients. The findings show
health professionals have a potential role to assist communication among
family caregivers. The findings may guide and inform health professionals
involved in the palliative care about better coordination among those
involved in patient care.
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© 2014 The Authors. Asia-Pacific Journal of Clinical Oncology © 2014 Wiley Publishing Asia Pty Ltd