Study protocol: missing voices - communication difficulties after stroke and traumatic brain injury in aboriginal Australians

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dc.contributor.authorArmstrong, E.
dc.contributor.authorHersh, D.
dc.contributor.authorKatzenellenbogen, J.
dc.contributor.authorCoffin, J.
dc.contributor.authorThompson, S.
dc.contributor.authorCiccone, N.
dc.contributor.authorHayward, C.
dc.contributor.authorFlicker, L.
dc.contributor.authorWoods, D.
dc.contributor.authorMcAllister, M.
dc.date.issued2015
dc.description.abstractBackground: Aboriginal and Torres Strait Islander Australians experience stroke and traumatic brain injury (TBI) with much greater frequency than non-Aboriginal Australians. Acquired communication disorders (ACD) can result from these conditions and can significantly impact everyday life. Yet few Aboriginal people access rehabilitation services and little is known about Aboriginal peoples’ experiences of ACD. This paper describes the protocol surrounding a study that aims to explore the extent and impact of ACD in Western Australian Aboriginal populations following stroke or TBI and develop a culturally appropriate screening tool for ACD and accessible and culturally appropriate service delivery models. Method/Design: The 3-year, mixed methods study is being conducted in metropolitan Perth and five regional centres in Western Australia. Situated within an Aboriginal research framework, methods include an analysis of linked routine hospital admission data and retrospective file audits, development of a screening tool for ACD, interviews with people with ACD, their families, and health professionals, and drafting of alternative service delivery models. Discussion: This study will address the extent of ACD in Aboriginal populations and document challenges for Aboriginal people in accessing speech pathology services. Documenting the burden and impact of ACD within a culturally secure framework is a forerunner to developing better ways to address the problems faced by Aboriginal people with ACD and their families. This will in turn increase the likelihood that Aboriginal people with ACD will be diagnosed and referred to professional support to improve their communication, quality of life and functioning within the family and community context.
dc.description.statementofresponsibilityElizabeth Armstrong, Deborah Hersh, Judith M. Katzenellenbogen, Juli Coffin, Sandra C. Thompson, Natalie Ciccone, Colleen Hayward, Leon Flicker, Deborah Woods and Meaghan McAllister
dc.identifier.citationBrain Impairment, 2015; 16(2):145-156
dc.identifier.doi10.1017/BrImp.2015.15
dc.identifier.issn1443-9646
dc.identifier.issn1839-5252
dc.identifier.urihttp://hdl.handle.net/2440/117585
dc.language.isoen
dc.publisherCambridge University Press
dc.relation.granthttp://purl.org/au-research/grants/nhmrc/1046228
dc.rights© Australasian Society for the Study of Brain Impairment 2015.
dc.source.urihttps://doi.org/10.1017/brimp.2015.15
dc.subjectAboriginal; stroke; traumatic brain injury; acquired communication disorder; rehabilitation; speech pathology; health worker; Australia; aphasia; dysarthria
dc.titleStudy protocol: missing voices - communication difficulties after stroke and traumatic brain injury in aboriginal Australians
dc.typeJournal article
pubs.publication-statusPublished

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