What's in a name? Searching the web for information about ethically contentious and emerging healthcare technologies
Date
2009
Authors
Axler, R.
Strong, K.
Jordens, C.
Ankeny, R.
Barlow-Stewart, K.
Kerridge, I.
Editors
Advisors
Journal Title
Journal ISSN
Volume Title
Type:
Journal article
Citation
Journal of Communication in Healthcare: Strategies, Media and Engagement in Global Health, 2009; 2(2):173-183
Statement of Responsibility
Renata E. Axler, Kimberly A. Strong, Christopher F. C. Jordens, Rachel A. Ankeny, Kristine Barlow-Stewart and Ian H. Kerridge
Conference Name
Abstract
This study examined the problems faced by lay people searching the web for information about emerging and ethically contentious technologies, by simulating a web search for information about creating a matched sibling donor for a bone marrow transplant (sometimes termed a ‘saviour sibling’). Five search terms related to the use of this technology were inserted into the top four search engines using well-recognised search strategies. The first page of results in each of the search engines was analysed. The study found little information available online about the creation of a ‘saviour sibling’. The nature of the information clearly depended on the choice of search term and varied significantly in terms of its scientific content, consumer guidance and value bias. Complete and comprehensive information about this means of securing a transplant donor cannot be accessed via a typical web search. In addition to providing information about creation of a ‘saviour sibling’, clinicians should also provide a description of the adequacy and limitations of web resources on this topic and guidance as to appropriate information-seeking strategies.
School/Discipline
Dissertation Note
Provenance
Description
Access Status
Rights
Copyright of Journal of Communication in Healthcare is the property of Henry Stewart Publications LLP