'We're here to listen and help them as well': a qualitative study of staff and Indigenous patient perceptions about participating in social and emotional wellbeing research at primary healthcare services

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dc.contributor.authorFarnbach, S.
dc.contributor.authorGee, G.
dc.contributor.authorEades, A.-M.
dc.contributor.authorEvans, J.R.
dc.contributor.authorFernando, J.
dc.contributor.authorHammond, B.
dc.contributor.authorSimms, M.
dc.contributor.authorDeMasi, K.
dc.contributor.authorHackett, M.L.
dc.contributor.authorTeixeira-Pinto, A.
dc.contributor.authorGlozier, N.
dc.contributor.authorSkinner, T.
dc.contributor.authorAskew, D.
dc.contributor.authorCass, A.
dc.contributor.authorBrown, A.
dc.date.issued2019
dc.description.abstractBackground: Research can inform culturally-appropriate care to strengthen social and emotional wellbeing (SEWB) among Aboriginal and Torres Strait Islander (hereafter, the term ‘Indigenous Peoples’ is respectfully used and refers to all Aboriginal and/or Torres Strait Islander Peoples of Australia). We acknowledge the cultural diversity of Australia’s Indigenous First Peoples and they do not represent a homogenous group.) (hereafter Indigenous) Peoples. We explore the perspectives of primary healthcare staff and Indigenous patients about their willingness to and experiences participating in SEWB research. Method: Process evaluation using grounded theory approaches of Getting it Right: The validation study, a national validation designed Indigenous SEWB research project (N = 500). Primary healthcare staff (n = 36) and community members (n = 4) from nine of ten primary healthcare services involved with the research project completed qualitative semi-structured interviews. Interview data were triangulated with participant feedback (responses to structured questions and free-text feedback collected during Getting it Right), study administrative data (participant screening logs, communication logs, study protocol, deviation logs and ethics correspondence) and interviewer field notes. Results: Three themes about staff, patient and community perspectives concerning research participation developed: (1) considering the needs, risk, preferences and impact of participation in research for staff, patients and community; (2) building staff confidence speaking to patients about research and SEWB problems and (3) patients speaking openly about their SEWB. Some staff described pressure to ensure patients had a positive experience with the research, to respond appropriately if patients became upset or SEWB problems were identified during interviews, or due to their dual role as community member and researcher. Patients and staff reported that patients were more likely to participate if they knew the staff outside of the service, especially staff with a shared cultural background, and they perceived SEWB as a community priority. Staff reported their skills speaking to patients about the research and SEWB improved during the research, which built their confidence. Contrary to staff preconceptions, staff and patients reported that many patients appreciated the opportunity to speak about their SEWB and contributing to research that may eventually enhance SEWB in their community. Conclusion: Our research project was considered acceptable by most staff and patients. The positive outcomes reported by staff and feedback from patients highlights the importance of providing opportunities for people to speak about their SEWB and for research-informed SEWB PHC care.
dc.description.statementofresponsibilitySara Farnbach, Graham Gee, Anne-Marie Eades, John Robert Evans, Jamie Fernando, Belinda Hammond, Matty Simms, Karrina DeMasi, Maree L. Hackett, on behalf of the Getting it Right Investigators
dc.identifier.citationBMC Psychiatry, 2019; 19(1):294-1-294-12
dc.identifier.doi10.1186/s12888-019-2263-8
dc.identifier.issn1471-244X
dc.identifier.issn1471-244X
dc.identifier.orcidBrown, A. [0000-0003-2112-3918]
dc.identifier.urihttp://hdl.handle.net/2440/121881
dc.language.isoen
dc.publisherBioMed Central
dc.relation.granthttp://purl.org/au-research/grants/nhmrc/1141328
dc.relation.granthttp://purl.org/au-research/grants/nhmrc/1056434
dc.relation.granthttp://purl.org/au-research/grants/nhmrc/101767
dc.rights© The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
dc.source.urihttps://doi.org/10.1186/s12888-019-2263-8
dc.subjectGetting it Right Investigators
dc.subjectHumans
dc.subjectSocial Behavior
dc.subjectEmotions
dc.subjectMental Health
dc.subjectQualitative Research
dc.subjectCulture
dc.subjectCultural Diversity
dc.subjectAdult
dc.subjectHealth Personnel
dc.subjectPrimary Health Care
dc.subjectAustralia
dc.subjectFemale
dc.subjectMale
dc.subjectCulturally Competent Care
dc.subjectAustralian Aboriginal and Torres Strait Islander Peoples
dc.title'We're here to listen and help them as well': a qualitative study of staff and Indigenous patient perceptions about participating in social and emotional wellbeing research at primary healthcare services
dc.typeJournal article
pubs.publication-statusPublished

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