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Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring WIth Feedback Trial (SWIFT) pilot: protocol for a qualitative study in Australia

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dc.contributor.authorDuncanson, E.
dc.contributor.authorBennett, P.N.
dc.contributor.authorViecelli, A.
dc.contributor.authorDansie, K.
dc.contributor.authorHandke, W.
dc.contributor.authorTong, A.
dc.contributor.authorPalmer, S.
dc.contributor.authorJesudason, S.
dc.contributor.authorMcDonald, S.P.
dc.contributor.authorMorton, R.L.
dc.date.issued2020
dc.descriptionData source: Supplemental material, https://bmjopen.bmj.com/content/10/11/e039014
dc.description.abstractINTRODUCTION: People receiving haemodialysis experience a high symptom burden and impaired quality of life. The use of patient-reported outcome measures (PROMs) is increasing in nephrology care, however their acceptability, utility and impacts are not well understood. METHODS AND ANALYSIS: We describe a protocol for a qualitative study to evaluate the feasibility and acceptability of electronic-PROMs (e-PROMs) data capture and feedback in haemodialysis following the pilot Symptom monitoring WIth Feedback Trial (SWIFT). SWIFT involves linkage of e-PROMs data, including symptoms and health-related quality of life, to the Australia and New Zealand Dialysis and Transplant Registry with feedback to patients' treating nephrologists and nurse unit managers. Focus groups and semistructured interviews will be conducted with nephrologists (n=15), dialysis nurses (n=24) and patients receiving haemodialysis (n=24) from six dialysis units in Australia. Question topics will include the technical and clinical feasibility and acceptability of e-PROMs reporting and feedback (including the barriers and enablers to uptake) and perceived impact on patient care and outcomes. Transcripts will be analysed thematically and guided by Normalisation Process Theory. ETHICS AND DISSEMINATION: Ethics approval was obtained from the relevant hospital Human Research Ethics Committees (HREC/18/CALHN/481; HREC/MML/54599). The findings from the SWIFT pilot and qualitative evaluation will inform the implementation of the SWIFT main trial, and more broadly, the use of e-PROMs in clinical settings and registries. TRIAL REGISTRATION NUMBER: ANZCTRN12618001976279.
dc.description.statementofresponsibilityEmily Duncanson, Paul N Bennett, Andrea Viecelli, Kathryn Dansie, William Handke, Allison Tong
dc.identifier.citationBMJ Open, 2020; 10(11):e039014-1-e039014-7
dc.identifier.doi10.1136/bmjopen-2020-039014
dc.identifier.issn2044-6055
dc.identifier.issn2044-6055
dc.identifier.orcidDuncanson, E. [0000-0001-9244-9638]
dc.identifier.orcidBennett, P.N. [0000-0001-9174-3499]
dc.identifier.orcidJesudason, S. [0000-0001-9695-0761]
dc.identifier.orcidMcDonald, S.P. [0000-0001-6103-1386]
dc.identifier.urihttp://hdl.handle.net/2440/131868
dc.language.isoen
dc.publisherBMJ Journals
dc.relation.granthttp://purl.org/au-research/grants/nhmrc/1159051
dc.relation.granthttp://purl.org/au-research/grants/nhmrc/1092957
dc.rights© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
dc.source.urihttp://dx.doi.org/10.1136/bmjopen-2020-039014
dc.subjectadult nephrology
dc.subjectchronic renal failure
dc.subjectdialysis
dc.subjectnephrology
dc.subjectqualitative research
dc.titleFeasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring WIth Feedback Trial (SWIFT) pilot: protocol for a qualitative study in Australia
dc.typeJournal article
pubs.publication-statusPublished

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