Ethical issues in funding orphan drug research and development

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dc.contributor.authorGericke, Christian Ansgar Ottoen
dc.contributor.authorRiesberg, A.en
dc.contributor.authorBusse, Reinharden
dc.contributor.schoolSchool of Population Health and Clinical Practice : Public Healthen
dc.date.issued2005en
dc.description.abstractThis essay outlines the moral dilemma of funding orphan drug research and development. To date, ethical aspects of priority setting for research funding have not been an issue of discussion in the bioethics debate. Conflicting moral obligations of beneficence and distributive justice appear to demand very different levels of funding for orphan drug research. The two types of orphan disease, rare diseases and tropical diseases, however, present very different ethical challenges to questions about allocation of research funds. The dilemma is analysed considering utilitarian and rights based theories of justice and moral obligations of non-abandonment and a professional obligation to advance medical science. The limitations of standard economic evaluation tools and other priority setting tools used to inform health policy decision makers on research funding decisions are outlined.en
dc.description.statementofresponsibilityC A Gericke, A Riesberg, R Busseen
dc.identifier.citationJournal of Medical Ethics, 2005; 31(3):164-168en
dc.identifier.doi10.1136/jme.2003.007138en
dc.identifier.issn0306-6800en
dc.identifier.urihttp://hdl.handle.net/2440/34014
dc.language.isoenen
dc.publisherBritish Medical Journal Publishing Groupen
dc.rightsCopyright © 2005 BMJ Publishing Group Ltd & Institute of Medical Ethicsen
dc.subjectethicsen
dc.subjectresearch prioritiesen
dc.subjectresource allocationen
dc.subjectorphan drug productionen
dc.subjectrare diseasesen
dc.subjectdeveloping countriesen
dc.titleEthical issues in funding orphan drug research and developmenten
dc.typeJournal articleen

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