A pilot study of social inclusion and quality of life for parents of children with autism spectrum disorder

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dc.contributor.authorDue, C.
dc.contributor.authorGoodwin Smith, I.
dc.contributor.authorAllen, P.
dc.contributor.authorButton, E.
dc.contributor.authorCheek, C.
dc.contributor.authorQuarmby, L.
dc.contributor.authorStephens, M.
dc.contributor.authorPaku, S.
dc.contributor.authorFerguson, S.
dc.contributor.authorFordyce, K.
dc.date.issued2018
dc.description.abstractBackground: Access to both childcare and early intervention for pre-school children with autism spectrum disorder (ASD) can be difficult for parents or carers and may impact on parental social inclusion and wellbeing. There is limited research investigating how specialist centres offering both services may impact on parental outcomes. Method: Parents whose children were attending such a specialised childcare setting in two states in Australia (Tasmania and South Australia) were invited to participate in a mixed-methods study investigating quality of life (Qol), social inclusion and perceptions of the centres. Results: Parents had typically low levels of QoL but reported a range of benefits from receiving services, including increased levels of community participation and increased competence and confidence in themselves as parents. Conclusions: Childcare centres offering specialist multi-disciplinary early intervention and parental support are valued by parents and assist with social inclusion.
dc.description.statementofresponsibilityClemence Due, Ian Goodwin Smith, Penny Allen, Eleanor Button, Colleen Cheek, Lyndsay Quarmby, Miranda Stephens, Sofia Paku, Sarah Ferguson and Kathryn Fordyce
dc.identifier.citationJournal of Intellectual and Developmental Disability, 2018; 43(1):73-82
dc.identifier.doi10.3109/13668250.2017.1310812
dc.identifier.issn1366-8250
dc.identifier.issn1469-9532
dc.identifier.orcidDue, C. [0000-0001-6485-6076]
dc.identifier.urihttp://hdl.handle.net/2440/113738
dc.language.isoen
dc.publisherTaylor & Francis
dc.rights© 2017 Australasian Society for Intellectual Disability, Inc.
dc.source.urihttps://doi.org/10.3109/13668250.2017.1310812
dc.subjectAutism spectrum disorder; quality of life; parental perceptions; early intervention; multidisciplinary; social inclusion
dc.titleA pilot study of social inclusion and quality of life for parents of children with autism spectrum disorder
dc.typeJournal article
pubs.publication-statusPublished

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