Empowerment to have a conversation with healthcare professionals: Co-designing the PRIME (PReparing people living with dementia and carers to Initiate conversations about their MEdicines) tool
Files
(Published version)
Date
2026
Authors
Ailabouni, N.J.
Hanjani, L.S.
Weir, K.R.
Reeve, E.
Abdulla, A.
Bohill, R.
Brandt, N.
Editors
Advisors
Journal Title
Journal ISSN
Volume Title
Type:
Journal article
Citation
Journal of Alzheimer's Disease, 2026; 109(3):1439-1457
Statement of Responsibility
Nagham J. Ailabouni, Leila Shafiee Hanjani, Kristie Rebecca Weir, Emily Reeve, Aaliya Abdulla, Ruth Bohill and Nicole Brandt
Conference Name
Abstract
Background: Empowering people living with memory problems, including Alzheimer’s disease, dementia, or mild cognitive impairment, and their carers to be engaged in the shared decision-making process about their medicines could reduce their risk of experiencing medicine-related harm. More co-designed resources to support them are needed. Objective: To co-design and test a conversation-starter tool to empower people living with memory problems and their carers (consumers) to have a conversation with their healthcare professional (HCP) about their medicines. Methods: We employed a consumer participation method with an eleven-member Steering Group consisting of six consumers and five HCPs from Australia and Maryland, United States of America.We conducted one-on-one interviews with consumers and HCPs to test the tool. We analyzed data deductively using the integrated-Promoting Action on Research Implementation in Health Services (i-PARIHS) framework and the Communication-Health Information Processing (C-HIP) model. Inductively, we also drew emergent themes that did not fit within the i-PARIHS. Results: We successfully co-designed the PRIME tool and recruited 35 participants (26 consumers; 9 HCPs) to improve the tool’s readability and comprehensibility. We identified four major themes including: Theme 1: Variable consumer self-advocacy; Theme 2: Value of the tool; Theme 3: Changing behavior, empowerment, and motivation; Theme 4: Future use, dissemination, and implementation. Conclusions: Our participants valued the PRIME tool as an empowerment resource. They believed it would remind them of their permission to ask questions about their medicines. This may lead to a closer alignment of medicines with a person’s goals of care.
School/Discipline
Dissertation Note
Provenance
Description
Access Status
Rights
© The Author(s) 2025. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). Request permissions for this article.