Caring decisions: the development of a written resource for parents facing end-of-life decisions

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dc.contributor.authorXafis, V.
dc.contributor.authorGillam, L.
dc.contributor.authorHynson, J.
dc.contributor.authorSullivan, J.
dc.contributor.authorCossich, M.
dc.contributor.authorWilkinson, D.
dc.date.issued2015
dc.description.abstractWritten resources in adult intensive care have been shown to benefit families facing end of life (EoL) decisions. There are few resources for parents making EoL decisions for their child and no existing resources addressing ethical issues. The Caring Decisions handbook and website were developed to fill these gaps.We discuss the development of the resources, modification after reviewer feedback and findings from initial pilot implementation.A targeted literature review-to identify resources and factors that impact on parental EoL decision-making; development phase-guided by the literature and the researchers' expertise; consultation process-comprised a multi-disciplinary panel of experts and parents; pilot evaluation study-hard-copy handbook was distributed as part of routine care at an Australian Children's Hospital.Twelve experts and parents formed the consultation panel. Eight parents of children with life-limiting conditions and clinicians were interviewed in the pilot study.Numerous factors supporting/impeding EoL decisions were identified. Caring Decisions addressed issues identified in the literature and by the multidisciplinary research team. The consultation panel provided overwhelmingly positive feedback. Pilot study parents found the resources helpful and comforting. Most clinicians viewed the resources as very beneficial to parents and identified them as ideal for training purposes.The development of the resources addressed many of the gaps in existing resources. The consultation process and the pilot study suggest these resources could be of significant benefit to parents and clinicians.
dc.description.statementofresponsibilityVicki Xafis, Lynn Gillam, Jane Sullivan, Mary Cossich, and Dominic Wilkinson
dc.identifier.citationJournal of Palliative Medicine, 2015; 18(11):945-955
dc.identifier.doi10.1089/jpm.2015.0048
dc.identifier.issn1096-6218
dc.identifier.issn1557-7740
dc.identifier.orcidXafis, V. [0000-0002-5104-9686]
dc.identifier.urihttp://hdl.handle.net/2440/98584
dc.language.isoen
dc.publisherMary Ann Liebert
dc.relation.granthttp://purl.org/au-research/grants/nhmrc/1016641
dc.rights© Vicki Xafis, Lynn Gillam, Jenny Hynson, Jane Sullivan, Mary Cossich, Dominic Wilkinson 2015; Published by Mary Ann Liebert, Inc. This Open Access article is distributed under the terms of the Creative Commons Attribution Noncommercial License (http:// creativecommons.org/licenses/by-nc/4.0/) which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited.
dc.source.urihttps://doi.org/10.1089/jpm.2015.0048
dc.subjectHumans
dc.subjectTerminal Care
dc.subjectPilot Projects
dc.subjectAttitude of Health Personnel
dc.subjectParents
dc.subjectProfessional-Family Relations
dc.subjectDecision Making
dc.subjectPublications
dc.subjectInternet
dc.subjectAdult
dc.subjectChild
dc.subjectAdvance Care Planning
dc.subjectAustralia
dc.subjectConsumer Health Information
dc.titleCaring decisions: the development of a written resource for parents facing end-of-life decisions
dc.typeJournal article
pubs.publication-statusPublished

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